Comments on: What it Really Means to Have Endometriosis

By: Jennifer

Jennifer — Mon, 21 Dec 2020 19:57:00 +0000

I have always had heavy heavy cycles through out my entire life. I have always been told that it wasn’t healthy so I would get the depo shit which stopped my shots all together. I had my last baby July in 2016. And in late 2017 I have Excruciating abdominal pain and I bleed for a month (no exaggeration) or more. I’ve gone to Obgyn and he told me most likely it was cancer (devastating) and it turns out I did not have cancer. I explained to one dr that I feel like there’s “movement” in the area and it it extremely pain full. She laughed at me and said that’s impossible for movement to happen. They offered me and IUD saying that will eventually stop it. I walked out and never returned. And the pain nor the bleeding have stopped. I have had to get several blood transfusions since 2018 because I lose so much blood. I have had to take intervenious iron because the pills make me sick. Sorry for the rant but I’d like to really know what are my options so I don’t have to live this way anymore ? And is there actual treatments

By: Joan

Joan — Wed, 07 Oct 2020 03:49:48 +0000

I am 78 and2yrs ago I started menistrating everyday and when the monthly came, it would be heavy. For the last year I have had cramps so bad everyday and now they are so bad I have to lay down til the pain subsides and now after 1 of these attacks I fill the toilet with so much blood, it makes me so weak, I cannot stand up. I have had clear crystals that join together and pass through the bladder. I think I am going to run out of blood and die. I need help.

By: Summer

Summer — Mon, 04 May 2020 19:13:34 +0000

I have suffered from endometriosis since my period began when I was 15. It always effected my life, but when I turned 30, it spiraled out of control. I suffered the week before with pain and swelling, which I referred to as my Saturn ring of pain, and then the cramping would start, the kind that puts you in a panic attack because it’s so uncomfortable. Next phase, vomiting, sometimes convulsions, then the 24 hour blackout because my body went through too much. Week 3, more pain and swelling. Week 4, recoup to start all over again. I saw sooooo many doctors, take these pain meds, have babies, see a shrink, let’s try medications, all to no avail. Finally, in my late 30’s I found a doctor who listened and I had a hysterectomy. It helped with the period part, but here I am almost 50 and I still suffer. I have horrible swelling, I even get women who congratulate me because they believe I’m pregnant. I can’t wear anything except stretchy pants that are loose, can’t wear a one piece bathing suit or anything that constructs my stomach or I will blow up and then the nausea takes over. I have burning under my skin that goes up my lower back and down into my legs. At this point in life, I don’t think anyone can help me, and my only solution to date to help with the pain is by using edibles to control it all.

By: Annie haygood

Annie haygood — Thu, 28 Nov 2019 13:58:39 +0000

Had a Partial hysterectomy removed my uterus left my ovaries haven’t had pain in a while now it’s back and it’s like it never left us it possible if is growing back rectum pain and horrible pelvic pain please help I thought it was gone!

By: Delin

Delin — Thu, 26 Sep 2019 18:19:40 +0000

In reply to Bleesy. Hey Bleesy. I am in the same boat as you that my doctor told me to take Vissane Dienogest,currently i am not married but i really want to have a baby. you said that you will be getting married so does the endo affects you for having a baby??

By: Delin

Delin — Thu, 26 Sep 2019 17:27:22 +0000

In reply to Ciara.

hey Ciara i read your story and i am feeling just the same as you felt…i really wanted to know if endometriosis affects fertility from your experience ..Your answer would really help
thanks in advance

By: Ginny

Ginny — Thu, 21 Mar 2019 03:16:00 +0000

I had severe pelvic pain for the first two days of my period starting when I was 12 years old. My doctor prescribed Darvon because my pain was so bad I actually fainted. I was admitted to the emergency room when I was 16 and had my first pelvic exam in the hospital. It was also very painful to go to the bathroom, and there was blood in my stool. I missed two days a month from school all through junior high and high school, and it really impacted my performance in school. I was not diagnosed until I was 18 (this was in 1968) and an ob/gym felt a mass in my abdomen and thought I may have cancer. Unbelievably I had surgery the next day, a Saturday, and woke up in a bed in the hall of the hospital because it was so crowded. I had a mass the size of a small melon in my abdomen and both ovaries, my bladder and parts of my intestines were fused together with scar tissue. The doctor performed a complete hysterectomy and that resolved my pain. The doctor didn’t tell me the cause of my pain was the endometriosis, and I found out 10 years later when I saw a new doctor who was shocked that I had a hysterectomy at the age of 18. He read my file and said “you must have been in tremendous pain for years for it to get this bad”. That’s the first time I realized the pain I had suffered for six years was caused by endometriosis. I haven’t had pain since the surgery, but every month I struggle with anxiety and depression around the time I would have had my period. I’ve wondered if this is caused by the pain I experienced when I was a young girl/woman and could it be a form of PTSD? I’m so glad this disease can be treated by a laparoscopy now, for those that are suffering, instead of abdominal surgery that leaves adhesions and a long scar.

By: Joy Karhu

Joy Karhu — Thu, 14 Mar 2019 07:43:05 +0000

In reply to Kate. Hi Kate, Always trust your gut instincts. Doing so has saved my life. Long story short I was dismissed by my thyroid specialist when I complained of a lump in my throat, he even rolled his eyes at me in the visit and told me "let's wait till your 4 month review for a scan, you must have a cold!". Because I felt so bad for so long and had waited 8 months for this initial visit I refused to leave his office without my referral for a scan. Fast forward through my scan, then biopsy and surgery to have my whole thyroid removed with said "suspicious lump w/ a 50% chance of being cancer according to the biopsy reaults". The morning after my surgery my surgeon came in with a huge smile on her face. She looked high was so thrilled. She told me they caught it just in time. That taking the nodule out that day prior saved me from thyroid cancer; that she had never seen cells so similiar to cancer that were not cancer yet. She is the chief of surgery at the University of Washington in Seattle, Washington and the best of the best. Her name is Dr. Zern you can look her up for proof. Listen to your body. Push for each and every test. Peace of mind is everything and if you sense something is wrong it is. But I also believe in the miraculous power of the law of attraction and manifesting healing. I believe mine wasn't cancer bc between the biopsy results and surgery I refused to own the scary results as mine. Namaste, Joy

By: Hodema

Hodema — Wed, 06 Mar 2019 22:55:08 +0000

In reply to Angel. For me, and many others with endo, we have found that a change of diet and lifestyle can minimize symptoms or make them disappear altogether including shrinking endo lesions and cysts. If you’re interested, the ‘endo diet’ is a good place to start, but the advice of Medical Medium Anthony William will take you a lot further.

By: Cheyanna

Cheyanna — Mon, 21 Jan 2019 03:30:41 +0000

In reply to Kate. I’m 11 and I have been dealing with pain for as long as I can remember I don’t know what I have my aunt suggested this I hate it because at night I may have a party or something fun but I have to miss it because I am in pain and I have not even hit my period yet and got a Colenascipy but they say I’m fine but it just gets worse it is like every time something good happen it knows so it hurts me